Cannabis and Endometriosis

Cannabis and Endometriosis

Will medicinal Cannabis help relieve the pain of Endometriosis? Tori is one of our EndoActivists and she’s been doing some research. Here’s what she’s found: “I have endometriosis and standard pain treatment (surgeries, pain meds, physio etc) has not worked... read more
Diet and Endometriosis

Diet and Endometriosis

Dear EndoActivists, you often ask us about diet and Endometriosis. I’m posting this article about dietary suggestions to reduce inflammation but remember, we aren’t dieticians so we don’t endorse it. An anti-inflammatory diet does help – refer... read more
Surgery and Endo

Surgery and Endo

This article originally published in Endometriosis News Sept 9,2016 by Magdalena Kegel Researchers recently reviewed published reports on the use of different surgical methods for deep infiltrating endometriosis, attempting to tease out which methods are most useful... read more
Off to RPA

Off to RPA

5 September  UPDATE Results: ‘possible low-grade changes’. This essentially means my body is still fighting HPV but that it is gradually healing. Improved results from last time where I had definite low-grade changes. Good news says my doctor. I’ll have another... read more
EndoActive a Prime Awards finalist

EndoActive a Prime Awards finalist

Exciting news for EndoActivists! EndoActive is one of four finalists for the prestigious Prime Awards in the category of ‘Best Public Health Initiative‘. We’re recognised for our initiative in holding SHARED PERSPECTIVES, the 1st Endoactive Endometriosis... read more
Syl to speak at Health Informatics Conference

Syl to speak at Health Informatics Conference

Feeling very nervous/excited to be presenting at HIC 2016. Before being invited to this conference as a speaker, I had no idea that these types of gatherings even existed. Hundreds of doctors, nurses, healthcare practitioners, entrepreneurs and tech-heads will all be... read more
Did you inherit Endometriosis?

Did you inherit Endometriosis?

Did you inherit Endometriosis? It’s worth asking your relatives about their experience with menstruation. My mother died way before Syl was even a twinkle in her father’s eye, but I strongly suspect she had Endo and probably some of her aunties too. But... read more
Your Stories: Katie

Your Stories: Katie

By the time Katie was diagnosed with Endometriosis her bladder was badly damaged. She feared she would never be able to have a baby. This is her amazing story.  Endometriosis has been has been part of my life for many years now. I don’t recall my periods being... read more
Have you heard about Visanne?

Have you heard about Visanne?

New members to this blog may be unaware that we started EndoActive after successfully campaigning to have a drug used to treat Endometriosis made available here in Australia. It is available in some countries overseas. We still get EndoActivists telling us they... read more
Power of the patient – that’s YOU!

Power of the patient – that’s YOU!

We are now living in an age where patients are re-claiming their power. Particularly in the field of digital health, people are realising that patients are a wealth of knowledge and that we are experts in our own right. We can empower ourselves by learning as much as we possibly can and deciding that we want to be taken seriously. We have the power.

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Your Stories: Marina

Your Stories: Marina

I started my first period at age 10. Being only in year 4 it was extremely petrifying and what made it worse was that it was paired with a whole lot of pain. My mother told me that it was all part of being a woman. 2004 – 2008 were four years of heavy periods, days... read more
Your Stories: James & Hitesha

Your Stories: James & Hitesha

“Culture and Pain: Growing up I’m quite sure my mother taught me about periods and the pain associated with it. I don’t really remember it. When it comes to women’s health, all I remember from my childhood was the first time a girl in my year six class explained to... read more
Your Stories: Charlotte

Your Stories: Charlotte

I’m 25 and have stage Four Endometriosis. At 14 years old I was the only one among my friends whom hadn’t started her period. I felt left out & like I was never going to become a woman; if only I could go back to my 14 year old self and let her know to enjoy the... read more
Your Stories: Amber-Lea

Your Stories: Amber-Lea

I was diagnosed with endometriosis at age 20 after suffering unbearable pain since I was 13. Doctors told me it was normal and always pushed painkillers on me that never did the job. During a trip to emergency a week before my 20th birthday three doctors told me I had... read more
Your Stories: April

Your Stories: April

April is a midwife. She wrote her story for us lying in a hospital bed on the ward where she works. Was it possible her pain was as bad as women in labour? Here’s April. I wanted to share with you my endo story. It’s quite recent, raw & a fair bit... read more