Your Stories

Your Stories: Katie

Your Stories: Katie

By the time Katie was diagnosed with Endometriosis her bladder was badly damaged. She feared she would never be able to have a baby. This is her amazing story.  Endometriosis has been has been part of my life for many years now. I don’t recall my periods being...

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Your Stories: Marina

Your Stories: Marina

I started my first period at age 10. Being only in year 4 it was extremely petrifying and what made it worse was that it was paired with a whole lot of pain. My mother told me that it was all part of being a woman. 2004 – 2008 were four years of heavy periods, days...

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Your Stories: James & Hitesha

Your Stories: James & Hitesha

“Culture and Pain: Growing up I’m quite sure my mother taught me about periods and the pain associated with it. I don’t really remember it. When it comes to women’s health, all I remember from my childhood was the first time a girl in my year six class explained to...

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Your Stories: Charlotte

Your Stories: Charlotte

I’m 25 and have stage Four Endometriosis. At 14 years old I was the only one among my friends whom hadn’t started her period. I felt left out & like I was never going to become a woman; if only I could go back to my 14 year old self and let her know to enjoy the...

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Your Stories: Amber-Lea

Your Stories: Amber-Lea

I was diagnosed with endometriosis at age 20 after suffering unbearable pain since I was 13. Doctors told me it was normal and always pushed painkillers on me that never did the job. During a trip to emergency a week before my 20th birthday three doctors told me I had...

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Your Stories: April

Your Stories: April

April is a midwife. She wrote her story for us lying in a hospital bed on the ward where she works. Was it possible her pain was as bad as women in labour? Here’s April. I wanted to share with you my endo story. It’s quite recent, raw & a fair bit...

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Your Stories: Tina

Your Stories: Tina

Hi Ladies, I follow this Facebook page and Syl’s blog and I remember last year reading an article about how Syl went to a family wedding and her Mum had to pick her up off the floor in the bathroom. It resonated with me because it reminded me a lot of myself and my...

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Your Stories: Tamra

Your Stories: Tamra

When Tamra returned to the GP for her ultrasound results he was away. She was terrified by what his replacement told her. This is Tamra’s story.  I have had excruciating periods my whole life. The first year of my periods I had extreme pain, heavy bleeding and I...

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Your Stories: Jess Belle

Your Stories: Jess Belle

I wanted to share my endo story. I don’t have any friends with it or anyone who understands. I got my period at 11, and bled 7 days straight. I was diagnosed with “precocious puberty”. I had injections once a month every month to slow down my puberty. But it didn’t...

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Your Stories: Joanna

Your Stories: Joanna

I’ve had 2 surgeries this year. I saw my first ever gyno in January this year. I opted for one that I could get into rather than the long wait to see Dr Evans. I’d already had vaginal ultrasounds (2 prior to seeing the gyno). Nothing remarkable was shown – lots of...

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Your Stories: Lori-Anne

Your Stories: Lori-Anne

I‘m a 32 year old Mum. Both my 26 year old sister and I have always had painful periods and used many forms of pain medications to control our pain. Endo does run in the family: both my Mum’s Mother (my grandmother) & my Mum’s Sister (my aunty) had it. Not sure...

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Your Stories: Jane

Your Stories: Jane

I was diagnosed with Endo at age 20. I also have PCOS, adenomyosis and pre-cancerous uterus cells. I’ve had around 11 surgeries since I was diagnosed and have tried every treatment, pill and herbal remedy available. The first specialist I saw at first denied I could...

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Your Stories: Nikki

Your Stories: Nikki

I’m 24 and it has been 15 months since my lap confirming my diagnosis of Endometriosis. When I was 14 years old I began experiencing a sharp pain a little to the right of my belly button that would last for up to 5 days and start roughly 3-4 days before my period. The...

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Your Stories: Rebecca

Your Stories: Rebecca

I’m 24 years old originally from Queensland. Since the first time I had got my period when I was 13 they have always been irregular heavy and painful and my periods would last 7-9 days. I thought it was normal as I never heard of Endometriosis until I was 20. My mum...

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Your Stories: Helen

Your Stories: Helen

I’m 49 now but I’ve battled with Endo for years. I had ‘suffered in silence’ for years thinking ‘Well, this is something most women have & I shouldn’t complain.’ I’d been admitted to hospital in my 20’s (I turned 49 in August) with non-specific abdominal pain and...

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Your Stories: Emily

Your Stories: Emily

Sometimes it helps to write your own story down – you can see the big picture more clearly. And it helps to be supported by women who understand what you’ve been through. Emily shares her story: Writing about my journey has been something I have wanted to do for years...

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Your Stories: Tori

Your Stories: Tori

In high school, my monthly period pain slowly became a daily pain. A constant dull, dragging, aching pain in my pelvic area. Imagine the pelvis is like a bowl. The muscle and bones make the bowl and the pelvic organs are inside the bowl. For me – it was mainly what...

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Your Stories: Brooke

Your Stories: Brooke

It seems strange to write about my ‘journey’ with Endometriosis. Like I’m Huckleberry Finn or Frodo Baggins setting out on a great adventure (HA). There are so many women with similar or much, much worse stories out there. I wasn’t sure it would be worth the...

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Your Stories: Rebecca

Your Stories: Rebecca

For 3 years, I have been in Pelvic Floor Physiotherapy every fortnight due to my over active pelvic floor. This occurred due to the extreme pain I was experiencing from my Endometriosis and chronic pelvic pain that had been going on likely from the age of 8 years old....

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Your Stories: Sarah

Your Stories: Sarah

Thanks so much for sharing Sarah MacLeod and it’s great that you’ve found the Pelvic Pain Foundation (PPFA). They’re a wonderful group of people doing fantastic things. For those of you who haven’t heard about the PPFA, you may have heard of...

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