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8 hours ago

Amanda Weatherley

Is it normal having endo for back and leg major muscle pain and leg going numb at times to almost fall over? Sorry if not allowed admin feel free to delete if not allowed. ... See MoreSee Less

 

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It isn’t unusual . Suggest you view Dr Susan Evans on our videos from our website . Buy the dvd of our 1st conference.

I just discovered this little gem! How is this not viral yet? Song for your period, especially those of us who also have PMDD.

Painting by Sarah Maple. Shameless music and shameless blurring of said painting by Yonic.
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3 weeks ago

Jodi Jones

https://facebook.com/womenworking/posts/…

Womenworking.com
Strong women <3
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Womenworking.com

4 weeks ago

EndoActive Australia & NZ

For some of us this is a scary situation. If only there were enough pain specialists to go around.

Real Relief
Codeine kills more than 100 Australians every year. From 1 February 2018 you will need a prescription to access codeine.

Learn more about the dangers of codeine and what this change means for you at www.realrelief.org.au
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Real Relief

Whattup everyone. As many of you know I’ve had a pretty crap run of health issues since September. First 6-8 weeks of intense fatigue followed by a 2 week virus which turned into cold sores and ulcers then a brief reprieve where I felt energetic beyond belief and did the whole Parliament / Canberra / Media week of madness then minor op to have CIN2 pre-cervical cancer cells lasered off my cervix and then felt great so I spent many days reorganising my office space and living room revamping / redecorating.

Then I came down with a cough/flu and
This morning I woke up at 2:30 having randomly bled through my bedsheets and did 4 loads of washing before 7am. Now I’m lounging on the couch with a migraine and a small glass of rose listening to Nigella Lawson’s sweet and sensual voice talking me through her Christmas special.

My doctor thinks I may have a minor infection from the op which is strange cause I’ve done everything Post-op that I was meant to do so it’s back on antibiotics which hopefully will help the bleeding and awful night sweats I’ve been having on and off for weeks.

My immune system, despite laying low and eating healthy, seems to be so crap and fragile at the moment. I was having such a robust, strong year of health up until September... ah well.

Yes I’m wearing sunnies inside - not because I’m an Alex Perry wannabe but because the light makes my eye balls ache.

After not having to worry about periods or bleeding for a few years now it’s a strange feeling!

Nevertheless, times like these you can feel frustrated or just roll with it and chill out till the body heals.

Going with the latter.

I had so many things on my to do list for today but what can you do. Anyone else in the same position as me?

Rose is not recommended but when it’s a festive day and you’re stuck on the couch, it seems acceptable.

❤️to you all. Syl xx
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Whattup everyone. As many of you know I’ve had a pretty crap run of health issues since September. First 6-8 weeks of intense fatigue followed by a 2 week virus which turned into cold sores and ulcers then a brief reprieve where I felt energetic beyond belief and did the whole Parliament / Canberra / Media week of madness then minor op to have CIN2 pre-cervical cancer cells lasered off my cervix and then felt great so I spent many days reorganising my office space and living room revamping / redecorating.

Then I came down with a cough/flu and 
This morning I woke up at 2:30 having randomly bled through my bedsheets and did 4 loads of washing before 7am. Now I’m lounging on the couch with a migraine and a small glass of rose listening to Nigella Lawson’s sweet and sensual voice talking me through her Christmas special.

My doctor thinks I may have a minor infection from the op which is strange cause I’ve done everything Post-op that I was meant to do so it’s back on antibiotics which hopefully will help the bleeding and awful night sweats I’ve been having on and off for weeks.

My immune system, despite laying low and eating healthy, seems to be so crap and fragile at the moment. I was having such a robust, strong year of health up until September... ah well.

Yes I’m wearing sunnies inside - not because I’m an Alex Perry wannabe but because the light makes my eye balls ache.

After not having to worry about periods or bleeding for a few years now it’s a strange feeling! 

Nevertheless, times like these you can feel frustrated or just roll with it and chill out till the body heals. 

Going with the latter.

I had so many things on my to do list for today but what can you do. Anyone else in the same position as me?

Rose is not recommended but when it’s a festive day and you’re stuck on the couch, it seems acceptable.

❤️to you all. Syl xx

 

Comment on Facebook

Yeah after my second surgery to remove the endo that was still there and to put 2 mirenas in to get rid of the adiomyosis my tummy stills swells and makes me look like I am pregnant. I know it's vain but I thought I would better for Christmas this year and I am carrying extra weight I can't seem to shift. Thanks syl for your honesty it's nice to be able to say what is really going on rather than just telling everyone your fine. Hope you heal up quick and start feeling good again

How sensational do you look given the circumstances! 100% in the same boat with the immune system issues. Hope you recover soon, love and light 💛

Just take it easy. You’ll be back soon! I lol’d so hard at the Alex Perry comment! 😂 I’m waiting around for my 15th period of the year and so far, feeling great. I’m doing tons of housework while I can because I don’t know how I’ll be in a few days... or tomorrow, or whatever. Last cycle was a haemorrhage (last one was five years ago) so I’m just so grateful my iron is just good enough to run around and do things. I’m silently pleading with my body to give me an easy cycle. I know what you mean about the immunity! I was catching everything going. Then I started bone brothing; then I only caught every second thing going. I added homemade sauerkraut to my daily diet, and I haven’t caught a sickness in ages! I highly recommend it.

Syl only you could make a Migraine and pj pants look good Merry Christmas it's been a Massive year for you guys thanks again for being our voice hope Santa brings you some amazing gifts, ( maybe a new uterus) jokes jokes 😘

Sending Love, healing wishes and commiseration you poor darling.....you are incredible....feeling lousy....looking fabulous ...Merry Christmas ❤️

Love to you beautiful! !! Omg where are your sunnies from?😍

Glad you are resting, I just had a tube out for an eptopic and over did it and made myself sick, resting is the way to go. Hope next year is awesome for you Syl xx

Thinking of you Syl! The last two weeks healthwise have been horrible for me. Almost went to emergency Wednesday night. My adhesions (from abdominal operations 31years ago) have been wreaking havoc causing blockages. Felt relief yesterday morning then ate a bit too much at the work Christmas show which put me in bed with nausea and back pain and fatigue. Saw my specialist a cpl weeks ago and I now have a dedicated team looking after me. Hoping to get on top of health in the new year and attempt to put weight on. Rest up & enjoy the rose. Although alcohol doesn't help with inflammation it tis the festive season...what's a little bit of inflammation we warriors can't handle 💪😘

Just done a year in bed with endo flair ups and chronic fatigue and now facing surgery for scar tissue blocking my intestines . Would love to be able to get involved in the awareness campaigns but not well enough .

Sending you healthy vibes Syl. I had my laprascope surgery today. Thankfully they didnt find any endo but now we have to work out why im having all the symptoms ive been having. But surgery went well. Hope you feel better soon 😄

Hope you start feeling better! I had a run (not to your extent) but for about 8-10 weeks of being run down sick no energy then bursts and so on random bleeding. Horrible

Felling you Syl. Had a massive endo fatigue moment this avo and just had to forget all the and and go to bed... 🙁 It's helpful to be reminded that it's not all in my head and it does happen to others. Hope the tide turns for you soon 🙂

big hugs- the thing I have learnt over the years is that I have to pace myself even on the days when I feel amazing- because otherwise it can have an effect on immunity. Rest and take it easy you have been too busy recently

You poor thing you can't take a trick lately can you? Hope you pick up soon and have a wonderful Christmas 🎄

I had a similar experience when I was put on the wrong antibiotics and was reacting to them negatively, I hope it isn't that. But yes, ups and downs and twisties for sure the last few weeks. We got this though!

Big love to you Syl. Your body wants you to stop... so bravo for listening. I understand so well where you're at. I'm sorry you aren't feeling good. Take care. I love the phrase 'everything changes, nothing ever really stays the same'... it helps me through the difficult stuff. BTW thank you for EVERYTHING. Cx

Feel your pain Syl. Sudden sever Endo attack yesterday morning at work, not even Oxynorm gave me reprieve. Settled a little overnight back with a vengeance 2 hrs ago, tummy literally tripled in size I just feel like disappearing. But.. a toddler to look after. Sux to be us, get well asap x

Struck down with a cold myself. Been two weeks and I'm over it! It's always wine time 😂 hope you recover soon!

Sending you love Syl and you totally rock those sunnies indoors. I rock them and the ròse too every now and then. 😎 You are inspiring and thank you for being so candid.

Love you're style with the sunnies and the glass of rose! Reading your post sounds a lot like the Endo/ ibs / chronic pain issues I've had flare up again since July and the 4 hospital stays I've had since mid August. 2 weeks post 3rd Endo excision lap surgery and I'm in a much better place, and my level of pain is Much much better. I went to see my gastroenterologist yesterday as my Endo gynae though I might have Crohn's disease, so off to drop off my poop sample today to be tested & in Jan st Vincent's will do a specialist ultrasound of my small bowel, less invasive and no horrible prep. Fingers crossed I don't need another colonoscopy! Hope the wine makes you feel better & you have a great Xmas! ❤️

Rest up chicken. Sucks when you do everything right and still end up worse for wear. Hopefully you will be on the mend asap. Have a lovely christmas xx

Reassuring to know it’s not just me tearing my hair out 😣 Not sure about Rosé but I can feel a gin coming on....... Merry Christmas ladies...... xx

Id like to know how you have travelled since your last surgery .. what did you do to get to where you are now and what are you doing now in a daily basis to keep the endo at bay. Ive had 3 surgeries in a two year period and i dont seem to have a very good plan in place like you do. You seem to have done really well and id like to be able to say i can manage it as well as you have.

Fuzzy eyeballs too! I need your cool Sunny’s Syl. Dizzy, pale as ghost and contemplating a glass or two of Rose myself. Get better soon beautiful xx

Feeling your pain Hun! Positive vibes for a speedy recovery and I am doing the same having a glass of bubbles just because that's the easiest thing too do when you feel like crap. Merry Christmas xx

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1 month ago

Jill Greaves

Hey syl hope you're feeling better. I don't know if you've ever heard of it but it might help as it's supposed to reduce inflammation. I can't work out how to share it with you though so maybe you could look at my posts and see it. It's called the science of being grounded and it's an amazing video I just thought it might help all you endo sufferers but I'm so annoyed with myself that I can't share it with you but please try to find it and let me know what you think 😘 ... See MoreSee Less

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