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2 weeks ago

Hi, I found this page by reading an article about the introduction of Visanne to Australia. Well done!
I'm 43 and had a laproscopy earlier this week confirming my endo (which I suspect I've had since my teens), it's fairly extensive - up to appendix, on bladder, patchy on bowel. My pain, fortunately, has really only been when I menstruate. I don't need a contraceptive (hubby has had a vesectomy). I am wondering, now that Visanne has been available for a while here now, how are people finding it?
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2 weeks ago

Hey ladies,

Just looking for some advice and comfort.
I’ve just been diagnosed with stage 4 endo that has infiltrated my bowels and am having surgery next week. They say there is a risk that I may end up with a temporary colostomy bag or a long term in dwelling catheter.

This is my first surgery for endo and I’m quite nervous about it not helping my pain and the risks.

Has anyone had any good experience with surgery or unpleasant things with surgery that I should be mentally preparing for.

Any words of wisdom, comfort or advice would be hugely appreciated.
Thanks
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Gonna put my hand up and say that I have some serious work to do when it comes to believing in myself and backing myself. It’s bizarre that, for so many of us, it doesn’t matter how much we achieve, how far we climb, how high we jump - it’s never good enough. In some ways this can work in our favour. Having high expectations of ourselves can help to ensure we don’t rest on our laurels and that we keep resetting the goalposts. But on the flip side, that negative self talk that comes with a lack of belief in one’s self can be crippling and if we don’t back ourselves, how can we expect others to back us? I’m noticing that my lack of self-belief and self-assurance is messing with me and I’m starting to see myself in a way that just isn’t the real me! It’s a strange feeling to know yourself so well, to know who you are, and then to feel like you don’t recognise the voice in your head, the story you tell others. I’m going to make a conscious effort to get better at trusting myself and backing myself and to live with less fear. Life gives us so many reasons and opportunities to be fearful, to feel uncertain, unconfident, unappreciated, to come undone... why spend our more peaceful, solitary moments telling ourselves we aren’t doing enough, achieving enough, earning enough blah blah blah it’s so BORING!! Life is hard. We don’t need to make it any harder on ourselves. Whenever I hear that shitty little voice in my head I’m going to turn down its volume and choose kindness instead. ❤️🧠 ... See MoreSee Less

Gonna put my hand up and say that I have some serious work to do when it comes to believing in myself and backing myself. It’s bizarre that, for so many of us, it doesn’t matter how much we achieve, how far we climb, how high we jump - it’s never good enough. In some ways this can work in our favour. Having high expectations of ourselves can help to ensure we don’t rest on our laurels and that we keep resetting the goalposts. But on the flip side, that negative self talk that comes with a lack of belief in one’s self can be crippling and if we don’t back ourselves, how can we expect others to back us? I’m noticing that my lack of self-belief and self-assurance is messing with me and I’m starting to see myself in a way that just isn’t the real me! It’s a strange feeling to know yourself so well, to know who you are, and then to feel like you don’t recognise the voice in your head, the story you tell others. I’m going to make a conscious effort to get better at trusting myself and backing myself and to live with less fear. Life gives us so many reasons and opportunities to be fearful, to feel uncertain, unconfident, unappreciated, to come undone... why spend our more peaceful, solitary moments telling ourselves we aren’t doing enough, achieving enough, earning enough blah blah blah it’s so BORING!! Life is hard. We don’t need to make it any harder on ourselves. Whenever I hear that shitty little voice in my head I’m going to turn down its volume and choose kindness instead. ❤️🧠

 

Comment on Facebook

So true and at the same time so hard 💙

It’s so prevalent in academia....

Amen sister 🔥

Thank you, i needed that 💛

2 weeks ago

Does anyone else get nose bleeds with endo flare ups? ... See MoreSee Less

2 weeks ago

EndoActive Australia & NZ

Deborah Bush CEO of Endometriosis NZ has been attending a global endo forum in Vienna.EEC Update #7

Dr Marc Possover, Switzerland, gave a passionate and convincing talk on ‘Nerve and functionality in the small pelvis’. He explained the pelvic nerves and identifying the location of pain related endometriosis such as the sciatic nerve. It was a fascinating and enlightening talk and we have included some slides from his talk for your interest. He stressed that surgery in this area MUST be performed by an advanced laparoscopic surgeon and not a general gynecologist.
#EEC2018
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Comment on Facebook

Such an amazing woman! I feel lucky that I could attent her presentation 👏

I have DIE and inflammation in my sacroiliac joints. Also a slipped disc at L5. This would have been fascinating to attend!

Olivia Maree

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