21 hours ago
Hi I have just spent quite a bit of money seeing my endometriosis specialist who has just advised me to fast for 7-10 days. I have had 2 laparoscopies and have several chronic conditions and have had severe cramps over the last couple of months. I have quite a bit of medication some of which needs to be taken with food. He said if that doesn't work I would need another laparoscopy to see what's happening. I said I really don't want more surgery I feel worse after each one. Has anyone else been told to do this? ... See MoreSee Less
I’m surprised! Never heard of such a thing!
2 days ago
5 days ago
The photo below was taken 3 and a bit years ago. We'd just started this page. We had just campaigned Bayer to release Visanne onto the Australian market... and won. We decided to hold Australia's first conference on endometriosis for patients AND doctors. Now we're assisting the Federal Government to design the 1st NATIONAL ACTION PLAN FOR ENDOMETRIOSIS! Bloody oath, gang!
Thank you to all of you who've been cheering us on from the beginning and to all of you newbies. Our EndoActive community is so wonderful. We adore you. <3
Read the caption on the photo below... 13.02.2015.
PS if you haven't read the 2nd Draft of the National Action Plan for Endo, read it asap and LEAVE YOUR COMMENTS BY COMPLETING THE SURVEY ON THE DEPT. OF HEALTH WEBSITE! Head here:
Syl & Lesley Freedman :)<3 ... See MoreSee Less
Thank you. Visanne has changed my life and so far keeping a hysterectomy at bay for my adenomyosis! Saved my fertility.
Congratulations and thank you for all your hard work throughout the years well done and truly appreciate everything you have done
You’ve climbed many mountains since then - so proud!❤️
Wonderful! Great job. What patience and determination.
Well done, wow, awesome, hope that soon in Israel.
MORE EXCITING NEWS!! 😃😃😃😜
The 'National Action Plan for Endometriosis’ is now LIVE on the Australian Government Dept. of Health website. ❤️
This is Draft 2 of the Plan. It is not the final. The cool thing is YOU GUYS are being asked by the government to comment on the plan. Go online and leave your comments ASAP. ✅(Link below) Public Review will be open until Monday 28 May.❌❌❌
As you know, EndoActive is a founding member of the Australian Coalition for Endometriosis (ACE) along with the other groups tagged in this post. ACE has been lobbying for change at the federal level and engaging the pollies for less than a year and this is what we’ve achieved! 😍
We still have a long way to go, to make sure this Plan is practical, adequately funded and implemented properly but it is a very exciting start to changing how women and girls with endo are treated in Australia! 😄😄😄
Man, what a great year 2018 has been for endo and we’re not even half way through!
Click the link below and leave your comments for the Government
on the National Action Plan for Endometriosis Draft 2 USING THE WEB LINK BELOW!✅✅✅
To have YOUR SAY on the National Action Plan:
1. Click this link https://consultations.health.gov.au/
2. Click 'Development of the National Action Plan for Endometriosis'
3. Once you've read the Plan, scroll down the page and you'll see 'Give Us Your Views'. Begin the Online Survey. ... See MoreSee Less
INSTRUCTIONS To have YOUR SAY on the National Action Plan: 1. Click this link consultations.health.gov.au/ 2. Click 'Development of the National Action Plan for Endometriosis' 3. Once you've read the Plan, scroll down the page and you'll see 'Give Us Your Views'. Begin the Online Survey.
Awesome news and one step at a time! Can't wait to have a good read over the weekend and provide some first hand feedback. We now have the ability to help make a difference to so many people lives, not just us endo chicky babes but our partners, work colleges and friends. As we all know, this impacts everybody! Exciting times ahead!! 💜😘✌🏽
Anita Muz Dunja Cvjetićanin Milka Santrač
How do i get a copy of the plan?
I want to get involved. Can someone contact me?
So great to have the opportunity to provide my feedback and suggestions!!!!
Christina Marie your Mum might be interested in this!
Em Romeo for Jess xx
Well done Sylvia and co.!!
Jem Gambito-Esguerra shared a post to EndoActive Australia & NZ's timeline.
2 weeks ago
https://facebook.com/austrials/photos/…#endometriosis #pain #women #clinicaltrial #research #brisbane #research #austrials Endometriosis Australia #endometriosissupportaustralia #Australianwomenwithendometriosissupportgroup ... See MoreSee Less
Well, shit. Who would’ve thought? 💅🏼This is one reason why I've been much less active on this page. I'm now teaching a class on Endo for 3rd year Physiology & Med Science students at University of Sydney.
As of today, I have a sexy new office in the University of Sydney Law School, Centre for Health Governance Law and Ethics where I'll be working alone.. late into the night, sippin' scotch (hate scotch) 🥃 and sitting in one of those chesterfield armchairs beside a green lamp, writing my thesis (on Endo obvs) while listening to Vivaldi 🎧.
BLOWIN' UP BLOWIN' UP! 💥 #staff ... See MoreSee Less
Lol. Accidentally sent the above text to my Psychiatrist. At least he knows I'm doing well!
Very proud of you chickadee xxxxx your mum
Awesome keep on talking so that the silence is no more
Nice one! 👍
That is amazing! I’m so happy you’re able to do this and on behalf of women everywhere THANK YOU for educating and inspiring at the same time! Xo
That’s brilliant Syl, hopefully the beginning of this happening nationally and internationally. Congratulations, they have the perfect person 👏👏😍
Amazing!!! Well done!!!! Fantastic!! Fabulous ❤️❤️❤️❤️
Oh so much WOW!!! Congratulations beautiful warrior woman 💛💪🏻💛
Congratulations what a fantastic achievement ❤️💕
Congratulations hun u truly deserve this 😀
Good move. You will develop a taste for scotch.
Well done you........a voice for so many of us.
Congratulations Syl 🤩👏👏
Good on you Syl!!!!!
you go girl!!
Well done! Congrats
You are awesome Syl!
Go you!!!! Congratulations ⭐️🌟💫
No stpping you
that’s so amazing!!
That's fantastic Syl. You rock!! 😘
2 weeks ago
When life starts throwing lemons on you,you can make a lemonade or a tequila shot. But what when life starts throwing watermelons on you?either it falls and bleeds red all around or if you catch it,it leaves you with scars and pains.As gynecologists call it, cancer, only which cannot be cured and if removed, has 80 percent chances of recurring, something you have to live with for life. Yes, that's endometriosis. Sounds like any other disease, gastroenteritis, sinusitis. But no, it's different and devastating. Not devastating like a bomb blast or tsunami, which happens and then you can rebuild your life. But like slow poison, that first causes pain during periods. Then the pain becomes continuous, deep and deeper. Painkillers become your candies which you pop day in and day out. Sometimes they help, sometimes they don't. You call in sick during your period days every month, only to be called a liar and be mocked at for using your 2 X chromosomes as exxcuses for exxtra leaves. But only you know what it's like to lie in fetal position, tears rolling down your eyes and painful clots down your vagina.Then slowly, backache and constant pelvic pain becomes a daily feature. You don't remember the last day when you were without it. You start feeling exhausted all the time. The pain or the anxiety doesn't let you sleep either. Somehow you have a heavy meal, take an alprax and try to smile to sleep, hoping to wake up fresh and ready to jog. But you end up waking up even more exhausted than you slept. Sometimes you just wanna jump off the building and end it. Sometimes you have the courage to get off the bed and make your own coffee. People keep telling you, it's in your head, you need to take effort, get up, go to gym. But believe me, whether in the head or in the pelvis, the pain and exhaustion eventually leaves you hopeless, helpless, dreamless and aimless. Your only dream being having atleast a day without pain or fatigue. My only dream.
Also, we have complimentary gifts, as if the pain and fatigue is not enough. Rectal irritation. Suddenly out of nowhere, you get a strong sensation to poop, while driving, while working, while sleeping. And when you rush to the loo, either you cannot poop and come out, or you get loose stools and wonder whether it was because of something you ate or your watermelon. Then comes depression and anxiety,mixed with a loss of identity and cluelessness about your future. I wanted to work as a busy clinician but now I wonder whether I will even be able to cook a meal or fill drinking water bottles without taking a break.
But there is a silver, rather a golden lining, sorry, linings for me. My mother is a gynecologist as well as a supermom, who diagnosed my condition early and is trying all means to reduce my pain and searching for the best surgeons to give me some relief. My husband is a sweetheart, who understands my pain and helps me get through the bad days and makes me smile even in the most painful times. And my will is strong(which seems to have spiralled down to zero now) and outlook bright( looks black and blank now), but I'm sure I'll rise up again.
So, watermelons, come, let's play. ... See MoreSee Less
That's exactly how I feel...
Aditi I think you would benefit from watching our videos from the First Endo conference we held - you can access them from our website in dvd or streaming 😊