This photo was taken in 2016 when EndoActive won its first award!! We were a finalist for ‘best public health initiative’ at the prime awards and walked away with a highly commended 🙂. This year we’re a finalist for ‘NGO of the year’! Hopefully we can take out the top spot tomorrow night but if not, we are so proud of our baby and all that she’s accomplished this year. What a cracker!!!!! 😍😇❤️👯♀️
#primeawards #endoactive #endometriosis #endo #chronicpain #chronicillness #spoontheory #endometriosisawareness #spoonie #awardseason #invisibleillness #womenshealth #1in10 #endogirlgang #feminist #girlboss ... See MoreSee Less
Hey EndoActivists, I'm a finalist for Cosmopolitan Australia's Women of the Year Awards 2018! #WOTY ❤️ You'll find me in the 'Game Changer of the Year' category 😊
It would be so wonderful to have your votes and support and whatever happens, I'm incredibly proud to have EndoActive's hard work recognised by the iconic #cosmo. .
We have achieved so much in just 4 years and we couldn't have done it without you cheering us on. Much of our success, we owe to you - our dedicated EndoActivists, old and new. THANK YOU !!!!! We just adore this magnificent community we've built together and take inspiration from you all every day.❤️😘😘 Head here to vote!
https://cosmopolitan.com.au/women-of-the-year/… . *INSTRUCTIONS*
- You have to vote for one woman in each of the 10 categories. - Vote as much as you can (you can vote 3 times I think? or more?) GO ENDOACTIVE!! .
Love, Syl ❤️❤️❤️ 💋🍾🥂 .
#endometriosis #endo #endometriosisawareness #period #womenshealth #cosmo #WOTY #wotyawards #cosmopolitan @cosmoaustralia #gamechanger #gamechangeroftheyear #endoactive #nationalactionplanforendometriosis #nationalactionplan #endogirlgang #girlgang #girlpower ... See MoreSee Less
Tune in EndoActivist!!! ❤️❤️❤️
I’m currently in Adelaide so couldn’t be in front of the camera but the wonderful @staceyjune - podcast extraordinare from @thethinkergirls is covering for me and has her own very different, very important endo story to tell. Thank you Stace for using your voice, your platform and raising awareness of #endometriosis !!! 😘😘😘🥑 ... See MoreSee Less
I missed it. I will look for it on catch up tv
EndoActive Australia & NZ EndoActive Australia & NZ is with Syl Sunny Freedman.
2 weeks ago
Hey EndoActive #girlgang! 😘😘
You may not know it but when this photo was taken back in January I was having a massive pain flare. (Proof that you CANNOT surmise a person’s life situation, relationship status, health, wealth, happiness, pain... ANYTHING from a photo on social media. 📱
As you can see I’m drinking a glass of rosè. 🍷 For many people, alcohol can trigger pain flares. For me, if I’m having a really bad one, I like to have a little drink as it relaxes me somewhat, particularly port as it’s sweet and warming in the belly. 🥃 but not so for everyone!!🥂
I’ve also found I can drink coffee / have caffeine ☕️ with no problem and same with cheese 🧀and chocolate🍫. THANK GOD!! Thank you life 🙏🏼 !
Foods that can give me a pain flare or mess with my gut and fatigue are GLUTEN NUMBER ONE!!!! Then things like lentils, beans I CANNOT digest so they are absolutely out.
Pasta...🍝🍞🥖🥪 (even gluten free pasta) and bread are things I have small quantities of and eat much less often as my body just runs better on protein 🥚🍳🍗🍣and veg and fruit🍌🍉🍏🍎🍐🍊🍋🥥🍈🍓🍇🍑🍒🍍 rather than carbs🥞🌭🥐🍕🍔.
Lots of processed crap 🍰🎂🍟🍔🍩and refined sugar are no-nos and milk🥛, ice cream 🍦🍨and cream🍮 - same thing.
I’ve found a mostly #antiinflammatory #diet has been HUGELY beneficial for #endometriosis pain, #guthealth, #guthealing and general well-being and a happy tummy aka not sore and not #bloated !!!
Asian food is my go to for take away and especially Vietnamese with all those healing bone broths!!! 🍜
Fish, veg, fruit, protein smoothies, fresh produce is what works best for me. 🥗🍲🌽🥑🥦🥒🍆🍅🍵🥢
I wanna hear from you guys! What gives your endo a flare up? What have you found that WORKS?!
Syl ❤️ ... See MoreSee Less
I am having one of those days today. Dr advised to head to emergency if it gets any worse....and my partner is away 😩😩😩
I do fodmap, onions, garlic, wheat, Dairy and alcohol flare me up.. I also try to avoid processed sugars, but it is nice on a bad day to eat fish and chips or something “naughty”. My dietician pointed out the benefits of comfort food on your gut when you feel ill. Lately been making fodmap friendly versions of comfort food now too, which helps.
I've lived with Endo for 20 plus years that I know of, had 4 surgeries tried everything under the sun. But never knew foods could affect this, how have I not known this. I know stress is a flare up the last 2 days have been bad.
Gluten, dairy, egg plant, soy, red meat,alcohol and caffeine flare me up. Following a low FODMAPs diet helps me
Movement is my biggest trigger, the more still and sedentary I can be during those days the better I fare. Any lifting of an object kills me. Even holding my hands up to the car steering wheel will set it off
I was (finally) diagnosed with Adenomyosis (endos evil sister, they call it) on Monday. I have been doing Keto for months now and found it helps with the pain. I cut processed foods and try to eat clean. Bread and sugar I have ditched, plus starchy foods. I had a little bit of bread and cake today for work party and ended up in the toilets vomiting from the pains, so definitely have the regrets.
Gluten 100%. I also flareup with fried foods, I stay away from them if I can. Almonds and nut milks kill my body terribly. I’m fine on caffeine as well, but tea seems to set me off if I have more than one cup every two days. I do miss donuts though lol.
Have recently been reading histamines, in alcohol & some foods, impacting endo. I used to be fine with gluten, eggplant & spinach, until around the time my endo was diagnosed. Definitely a symptom of an overreactive immune system. Agree that even without gluten, carbs aren't easy to tolerate.
Too much sugary foods and sometimes cheese, I don't really get pain from them but they mess with my gut
Too much sugar - soft drink especially and sometimes dairy. But also exercise can sometimes bring on a massive pain flare up, and other times it’s okay? Haven’t worked out why yet?
Some exercise will flare my endo up. One day I can do a really strong ab workout and the next day my body will refuse to do a sit up. I stay away from garlic and onion, they can be killer. I have ibs so I follow a low fodmap diet that suits me and that seems to help.
Bad sleep, not eating at least 1 super food meal a day etc but stress and anxiety are my biggest triggers. The others I do to the best I can but sometimes you just can’t control that beast.
I seem to be able to eat most things. Stress is my main trigger for a flare up 😔
Stress! sugar, most processed foods, alcohol, not enough water, low nutrition result in fatigue flares. Stress is the worst though. Exercise can trigger joint pain and fatigue also
Lifting, over tired, gluten, fried food. I was told I was fructose, lactose & gluten. And started cutting all those out but still get the pains. Knowing it is the endo causing my pains as it is different not just my gut but lower.
I have eliminated all red meat, processed meats, and gluten. I get away with a very little bit of diary. I find that heavy dense foods, like mud cake, or bread rolls, and even a lot of fried foods make me feel sick and I will have pain the next day. I try to stick to lots of fruits and vegies.
Alcohol, processed food, sugar, dairy. But alcohol is the worst 😩
Caffeine, dairy and sugar 😞
Too much sugar 😩😩
Arki Grace Mountfort❤️
Tannika Wolff Krystal Elder
2 weeks ago
Hi all, I recently had 2 mirenas removed and I have had a lot less pain since then which is great. I am seeing the specialist again soon. Just wondering does anyone have trouble with aching legs? I have had this problem off and on throughout my life and because I have a number of health conditions it's hard to know what goes with what. If you have trouble with this, what works for you? My legs ache for hours and hours at a time and I notice it more at night making sleep elusive. Any suggestions appreciated, I will also discuss it with the specialist but until then, I am hoping some of you might have some tricks for dealing with this! ... See MoreSee Less
Rachel a pelvic physio may help but best if all : watch the videos from either of EndoActiveconferences - on our website. The specialists explain.