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What goes up must come down! All the highs of Melbourne have left me exhauuuuuusted. Last night I went to bed at 8 and slept for 16 hours 😴 been counting down the minutes till I can get straight back under the covers. Thrilled to bits but just wanna snooze cocooned in a blanky for the rest of the week.
Syl ❀️
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What goes up must come down! All the highs of Melbourne have left me exhauuuuuusted. Last night I went to bed at 8 and slept for 16 hours 😴 been counting down the minutes till I can get straight back under the covers. Thrilled to bits but just wanna snooze cocooned in a blanky for the rest of the week. 
Syl ❀️

 

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The endo fight Syl. You give it your everything and your thinking yeah yeah I’m handling it then like a massive Tsunami your taken from under your legs and you crash in heap but unfortunately with endo not only do you crash and burn but it sucks your life force out of you until your eyeballs feel like they are going to pop out of your head from fatigue and pain! I’ve been watching you and me over the years. I atleast have by some miracle maintained my job. My heart goes out to you. Your an inspiration to all us endo girls. Super proud of you. Let’s hope your bout of endo passes soon dearest one! ❀️

You deserve it Syl. We all can relate. When you get down time, take it and 'run' with it. You ladies did great xxxx

Do it Syl. You need to take care of you xx

❀️😘

3 days ago

Elizabeth Hogan

Hey Endo ladies, story time! Have recently had my Mirena taken out after having it put in during surgery almost 2 years ago. From day 1 I felt that something wasn't right with it, the pain was still there, but it was different, and I just stopped feeling like me. I'd visited numerous doctors for the whole 2 years, constantly telling them something didn't feel right. I've been through a bunch of different pills, for pain and hormones, and nothing seemed to make me feel right. Finally, I saw another different doctor who took me seriously when I told them that this thing inside me didn't feel right. She took it out then and there.
Within hours the pain went back to the way it used to feel, everything felt natural, like my body was hurting, rather than something hurting my body.
Within days I'd started to feel like me again!

I've learnt my lesson from all this...trust your feelings! If you don't feel right, tell your doctor, and don't let them try to tell you you're wrong about how you feel!

Big love to everybody on your endo journeys! β™‘
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Hey Elizabeth. Great story. I’d love to publish it on our Facebook page. (Visitor posts like the one you’ve left don’t get much visibility). If you’re happy for me to publish, can you please email me a photo of you to go with the story and if you’d like to expand on the story and lengthen it, that’s fine too. Email syl@endoactive.org.au 😊x

3 days ago

EndoActive Australia & NZ

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Looking awesome despite the disease, thanks for not giving up the fight

Awesome work - thank you!

Go you great thing

3 days ago

EndoActive Australia & NZ

πŸ˜ŠπŸ˜ŠπŸ˜ŠπŸ˜ŠπŸ˜Šβœ… ... See MoreSee Less

 

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You guys are changing the world ! Xx thank you πŸ™πŸΌβ€οΈπŸŒΌπŸ‘—

Looks like a great day! Thank you for making a change πŸ™‚

3 days ago

EndoActive Australia & NZ

HOLY GUACAMOLE πŸ₯‘ !!! What an INCREDIBLE day!!!!. For the last 8 hours we have worked with some of Australia’s best experts in Endometriosis to craft the National Action Plan for Endo. We made very real progress today. The day was split into 3 major focus areas;
βœ…Awareness & Education
βœ…Clinical management and care
βœ…Research
Within each segment we split into groups made up of department of health staffers, Endo patients, clinicians, pollies, researchers and advocates. πŸ‘¨πŸΌβ€βš•οΈπŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΌβ€πŸ”¬πŸ‘©πŸ»β€πŸŽ“πŸ‘©πŸΏβ€πŸ’»πŸ‘¨πŸ½β€πŸ’»πŸ‘¬πŸ‘«πŸ‘­
It was an incredible feeling to be in a room with 30 of the β€˜best of the best’ all contributing ideas to the FEDERAL GOVERNMENT and have them listen to us but best of all - to all agree on what needs to be done in Australia to ease the suffering for women and girls with Endo and get shit done!!!! β€ΌοΈβ€ΌοΈβ€ΌοΈβš οΈ
Minister Greg Hunt was there and gave another brilliant speech. He asked me not to repeat this bit but when he spoke to his wife about bringing attention to endo, she said, β€œABOUT BLOODY TIME!” πŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ
When I asked Greg how much money he’d be allocating to Endo, he said, β€œSyl, in the millions”. We’ll hold you to that Greg! πŸ€žπŸΌπŸ‘πŸΌπŸ˜
So EndoActivists, the end result of today was:
βœ…After the 1st draft of the National Action Plan there will be public consultation
βœ…By 1st July there will be delivery of the National Action Plan
The is the highest level of achievement we’ve had to date I reckon so put your party pants on and celebrate!!! 😁😁😁
Syl β€οΈβ€οΈβ€οΈπŸ“·

Nicolle Flint Member for Boothby
Gai Brodtmann
Nola Marino MP
Greg Hunt MP
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HOLY GUACAMOLE  πŸ₯‘ !!! What an INCREDIBLE day!!!!. For the last 8 hours we have worked with some of Australia’s best experts in Endometriosis to craft the National Action Plan for Endo. We made very real progress today. The day was split into 3 major focus areas; 
βœ…Awareness & Education
βœ…Clinical management and care
βœ…Research 
Within each segment we split into groups made up of department of health staffers, Endo patients, clinicians, pollies, researchers and advocates. πŸ‘¨πŸΌβ€βš•οΈπŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΌβ€πŸ”¬πŸ‘©πŸ»β€πŸŽ“πŸ‘©πŸΏβ€πŸ’»πŸ‘¨πŸ½β€πŸ’»πŸ‘¬πŸ‘«πŸ‘­
It was an incredible feeling to be in a room with 30 of the β€˜best of the best’ all contributing ideas to the FEDERAL GOVERNMENT and have them listen to us but best of all - to all agree on what needs to be done in Australia to ease the suffering for women and girls with Endo and get shit done!!!! β€ΌοΈβ€ΌοΈβ€ΌοΈβš οΈ
Minister Greg Hunt was there and gave another brilliant speech. He asked me not to repeat this bit but when he spoke to his wife about bringing attention to endo, she said, β€œABOUT BLOODY TIME!” πŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ
When I asked Greg how much money he’d be allocating to Endo, he said, β€œSyl, in the millions”. We’ll hold you to that Greg! πŸ€žπŸΌπŸ‘πŸΌπŸ˜
So EndoActivists, the end result of today was:
βœ…After the 1st draft of the National Action Plan there will be public consultation 
βœ…By 1st July there will be delivery of the National Action Plan 
The is the highest level of achievement we’ve had to date I reckon so put your party pants on and celebrate!!! 😁😁😁
Syl β€οΈβ€οΈβ€οΈπŸ“·

Nicolle Flint Member for Boothby
Gai Brodtmann
Nola Marino MP
Greg Hunt MP

 

Comment on Facebook

Plus we need to stop normalising period pain like they did in the 80’s and 90’s when it was β€œnormal” to live on medications such as Ponstan and Naprogesic. As an impressionable teenager at the time, I felt my symptoms were completely normal, it wasn’t until my early 20’s that I was finally diagnosed and realised my pain was severe because of endo, not because it was a β€œnormal” thing to experience!

how can endometriosis sufferers get involved in the public consultation?

How can those who require clinical management and care hear more about your work? Do you have a list of recommended providers someone with Endometriosis can access?

Can't post a selfie. Picture me with a giant thumbs up. Can we get you girls an Order of Australia or something for services to women?

Congrats syl and mum you have made such an impact on people and achieved amazing things all while fighting your own battles with endo! I think you and your mum should have been given an order of Australia or something because what you have done is mind boggling! Congrats congrats congrats

Such a great room full of inspirational and dedicated people. Thank you from the bottom of my heart πŸ’™

Fantastic news! I have just had my first cycle post codeine sales ...ended up with the home doctor service and I have to say he was the most empathetic doctor who recognised what I was going through...hell.

πŸŽ—πŸ’›. Time for a cure. Syl & Lesley you guys Rock my world. πŸ™ŒπŸ» Everyone involved Thank you.

You rock Syl. Well done to you and all the other groups that have amde up ACE.

Is that Prof Abbott? Wonderful man!!

This is amazing! Well done to everyone involved!!!

Amazing.

THANK YOU LADIES!!! We so appreciate everything you do for us. Lots of love xoxoxoxo

Amazing. You are doing great work. Thank you.

What an amazing achievement!!! Thank you so much for your hard work, it really gives me hope xx

Cannot come soon enough 😩 Thank you beautiful humans β™₯️

Thankyou for being our voice ❀️

Fanbloodytastic!!!!!!!!

Sounds like an amazing & inspiring day. So motivating!!! Congrats and WELL DONE πŸ‘

You are all amazing.

Fantastic to hear! Keep up the great work!

Christina Batista seems like a good page to get in on. Hope you're feeling better xx

Thank you!!!!

Fantastic effort!

Awesome!!!!!

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4 days ago

EndoActive Australia & NZ

WHATTUP MELBOURNE! Today is a bloody exciting day, gang. 😁 Minister for Health Greg Hunt MP has invited EndoActive and our newly formed group the Australian Coalition for Endometriosis (ACE) to Melbourne for a Roundtable discussion. Thanks to Gai Brodtmann, Nicolle Flint Member for Boothby and Nola Marino we’re here to meet Minister Hunt and staffers of the Department of Health to put forward ideas for the National Action Plan for Endo! There will be 30 of us in total. ACE is here to represent YOU!!! More photos to come. Check out our new ACE website here
acendo.com.au

WOOHOOOOOO!! πŸ˜πŸ˜πŸ˜πŸ˜πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜β€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ
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WHATTUP MELBOURNE! Today is a bloody exciting day, gang. 😁 Minister for Health Greg Hunt MP has invited EndoActive and our newly formed group the Australian Coalition for Endometriosis (ACE) to Melbourne for a Roundtable discussion. Thanks to Gai Brodtmann, Nicolle Flint Member for Boothby and Nola Marino we’re here to meet Minister Hunt and staffers of the Department of Health to put forward ideas for the National Action Plan for Endo! There will be 30 of us in total. ACE is here to represent YOU!!! More photos to come. Check out our new ACE website here   
acendo.com.au 

WOOHOOOOOO!! πŸ˜πŸ˜πŸ˜πŸ˜πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ‘ŠπŸ½πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜β€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈβ€οΈπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌπŸ‘πŸΌ

 

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Yass!! This is beyond bloody awesome!! Thank you for representing all of us women! So exciting! So proud of you both and beyond grateful for all you do for us!

Thanks for really advocating for a better life for women with endo

Best of luck and thanks for doing this 😊 and Syl: rest up afterwards ❀️

Keep working it ladies! You are doing awesome!! x

Wish I could be there with you!!!! Go get it girls πŸ‘Š

Thank you so so much

Love your dedication and hard work lovely ladies. We all appreciate what you do, Pls never forget that. πŸŽ—πŸ’›

I'm sure you'll do us proud ladies. Love your work 😘 (And enjoy Melbourne!)

Hope a goes well!!!

Love your work ladies πŸ’•

Amazing stuff ladies! Keep up the fantastic work! πŸ™ŒπŸΌ

What an amazing day! πŸ’™

Best news in awhile, thankyou for your never ending dedication to this cause!

This is incredibly exciting. Congratulations and thank you for all of your hard work. 🌟β™₯️🌟

Well done ladies! πŸ’—

Awesome work ladies πŸ’›

Good stuff. Suffered for years from age of 22. Three major operations. Incredibly fortunate to have a daughter (at 38) when told I'd never have children. Now in my 60s not an issue. I wouldn't put my worst enemy through the pain.

THANK YOU to all of you! ping: Carol Rowley Hirt Emily Donnan Carla LaLa

Amazing! Thankyou thankyou thankyou. πŸ’ž

I love this!

Erin Watene

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4 days ago

Kelly Kelly

Hi Ladies,any recommendations for a specialist in Bella Vista NSW.i have googled them all but would like a bit of feedback.thanks in advance πŸ™‚ ... See MoreSee Less

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