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If you're feeling anxious, unable to switch off... lay down, put on an eye mask and listen to this relaxing music for a wee while. A drop or two of lavender oil on your temples can help too.I wrote “Memories,” a few weeks ago when I was feeling especially nostalgic for the past. Beautiful memories were brought back to life in my mind and they in... ... See MoreSee Less

1 week ago

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Isolation and mental health: with endo in the mix we all need help.
Last night our neighbours hosted front porch karaoke - about 20 or more of us out there in the dusk in our front yards. It was fun. We were able to forget about the downside of the C word for an hour or so. Best songs for the circumstances: Beatles - Come Together, Stones - Satisfaction, INXS - Never Tear Us Apart.
Tell me: How are you coping? ... See MoreSee Less

2 weeks ago

Coronavirus COVID-19: How to look after your mental health when working from home - ABC Life

abc.net.au

Here are four things you can do to look after your mental health if you're working from home because of COVID-19.

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Women's Health & Research Institute of Australia ... See MoreSee Less

2 weeks ago

Women's Health & Research Institute of Australia

Tanya Wollstein, WHRIA's psychologist recommends this great blog with 25 simple tips to help cope with the worry and unease during COVID

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TONIGHT! On SBS INSIGHT 💫 #chronicpain ... See MoreSee Less

2 weeks ago

SBS INSIGHT

More than 3.2 million Australians are living with chronic pain - Sister Mary-Lynne Cochrane is one of them. But how we treat chronic pain is changing.

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Sister Mary-Lynne is truly one amazing woman!!

We're so pleased that many of you have agreed to take part in the focus groups helping to develop a Digital Health Platform for Endo. Now we need a few more of your partners to join in. If you know anyone over 18 who supports someone with Endo please register on the online form:
https://www.surveymonkey.com/r/EOIendo ... See MoreSee Less

3 weeks ago

Expression of interest - Endometriosis Digital Platform

surveymonkey.com

We are looking for focus group participants in Australia to discuss your experience with endometriosis.

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Hey EndoActivists,
Here's the reminder you didn't ask for to get out of the house, get some fresh air and sun if possible (hormones and immune system love vitamin D) and gently move your body.

We are collectively going through a very strange experience.
Some of us are working from home. Others are unemployed (like me). All of us must play our part in staying home to protect our most vulnerable, which will include some of our community.

Of course it is IMPERATIVE that we all play our part in the #stayhome movement and take social distancing seriously.

The entire world now has to navigate ways to stay sane, stay healthy and stay connected whilst also adhering to the government's rules to help #stopthespread of COVID-19.

As of Tuesday 31 March, Australians are subject to unprecedented laws as the government moves to mitigate the spread of COVID-19.

In my opinion, these are not clearly outlined in the government's coronavirus app or the Dept of Health website. There is clear advice on there but it isn't clear which advice is 'strongly advised' and which is law. That said, the app is certainly worthwhile downloading.

EndoActivists, on your higher energy days I want you to try your hardest to get outside and stretch, meditate, breathe, exercise, just sit and chill... whatever.

Getting outside is like giving your brain a scrub and a shower. It's exercise for your eyes to look at the horizon. It is so important mentally and physically and emotionally for you to stay grounded.

DO IT FOR ME! In my darkest days of self-isolation over the years after surgeries or during pain flares, getting outside has been my saviour. Even if it's just your balcony, just get out there and breathe.

This Mamamia article gives a clear explainer of the new Australian laws state by state and is well worth a read so we understand what constitutes a fine and what is acceptable.

https://mamamia.com.au/16-reasons-to-leave-home/

Take care of each other, babes.

Love, Syl 😘( A heavily filtered, Syl) ... See MoreSee Less

4 weeks ago

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Hey EndoActivists,
Based on my little poll this morning and my need to connect with our community during these VERY STRANGE TIMES I will be using stories to document my time in self-iso during COVID-19 ‘lockdown’.

It’ll be some endo stuff, some random stuff...kind of like a personal vlog to stay in touch with you all and to have a way to STAY CONNECTED!

I’m open to suggestions on what to include day to day so feel free to DM me with ideas.

We can do Q and As, normal chit chat, endo advice, diet talk... whatever you want.

As you all know l, I’m an open book about endo lyf and personal stuff as well as anything EndoActive related OBVS.

HMU with your suggestions and let’s stay in touch during our self-iso!

All my love and to those of you who are in pain rn, I’m thinking of you, I’m sending you love and I’m encouraging you to get that hot water bottle on the tum, practice self-care and JUST DO YOU BABE ❤️❤️❤️❤️

Love, Syl
Cofounder EndoActive 😘 ... See MoreSee Less

1 month ago

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Rachel Langley

1 month ago

Katelynn Ward ... See MoreSee Less

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EndoActivists from Australian regional and remote locations: we need your help.

We are working with Australian Coalition of Endometriosis and Robinson Research Institute – the University of Adelaide - to develop a digital health platform to empower and support people with endo, to make informed and timely decisions regarding their health.

As part of this consumer consultation we will conduct focus groups & a survey so we can learn about what challenges you face in managing pelvic pain and endo and how we might be able to address them using digital solutions.

We need participants that are aged 16 and over, live in Australia in Regional and Remote locations, experience pelvic pain or have been diagnosed with endometriosis. Further information is available on the information sheet. The groups will be conducted online in March and April.

If you wish to register your interest to participate in one of the focus groups above please:
• follow the link and fill in your details
• contact Beck O’Hara from the Robinson Research Institute – University of Adelaide endo@adelaide.edu.au or
• call (business hours) (08) 8313 1527. ... See MoreSee Less

1 month ago

Expression of interest - Endometriosis Digital Platform

surveymonkey.com

We are looking for focus group participants in Australia to discuss your experience with endometriosis.

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