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I’m glad you reposted with updated comments. Personally I was disappointed seeing this and wanted to comment but didnt. if I’d seen this years ago I’d thought my pain was not valid enough... reinforcing what Drs had been telling me was ‘normal’. My pain was downplayed by others for over 20 yrs that I believed it myself...Well I thought I must be a very weak and lazy person. I don’t feel any period pain should ever be normalised. Thanks for reposting 🙂
I think it is helpful. I am so fed up with other women minimizing endo by saying they have period cramps so know all about it. If this clip gives even some an idea then it's a plus.
I'm on the side of "the video is problematic" but I'm super loving the respectful discussion, so rare and refreshing to find people treating each other well over differing opinions on the internet.
I think it still helps in a way for women without endo and for men to realise that endometriosis pain is much more than simply " a bad period ". The way i veiw this message isnt necessarily that one has it worse than the other, simply that they are different and so should be treated differently.
I've literally just had surgery this afternoon, with endo found in my bladder and bowels. While my periods have never been great, and endo was suggested to me years ago... Reading what some of you guys go through had me second guessing. Plus nothing ever came up fron ultrasounds (which is never 100% going to diagnose, and now I know why), so I sometimes felt like I was trying to take on something I didn't have, or wasn't allowed to claim. That all said... I think if the video was clearer at the start saying that everyone is different, and that these are just a general comparison, I think it's still good to help get the word out to people. ESPECIALLY younger women and teenagers.
So good!! I wish more people understood the difference. Even my own family shrug it off when I say endo pain. It’s like the world doesn’t get it.
Caitlyn Spence
Not sure I agree with the simplistic portrayal, but it does help people understand. Then again, I know people who have had endo and not been affected by it at all in terms of pain, only in terms of fertility. A video also addressing the variance in the endo experience may also be useful for people to understand, ie. those who have, or know people who have endo, who didn’t take one day off work because of it. That can be frustrating in addition to the judgement from non-endo women of endo experiences.
News from @lenadunham #endometriosis #endo
Totally relate to the belly button part. I actually thanked my surgeon at my post op for fixing my belly button after it was stitched back too tight in a previous surgery 😂😂
Proof that hysterectomy is not a cure. That said, I completely understand and respect why she had one and wish her better health
Can relate just had a hysterectomy on Thursday
Omg I feel ya I have stage 4 endometriosis my whole left ovary is covered in Chocolate Spots and has spread now I cry every time I need to poo I've never felt pain like this and I've had 6 open hearts and 3 c sections and this pain is worse then all of that, I hope one day they find a cure 😢 in 4 days I gwt my op date to have my whole left ovary removed instead of a full hysterectomy
One word. Legend!
Cara Davidson 😞 she sums up so well 💔
💪🏼💛
Sareena Makiri
Lots of interesting conversation happening around the comparison between the two experiences of pain. I initially thought that for those who don’t quite understand how endo pain can be different from cramps or who simply need an insight into how many women with endo live at tunes, this was a good intro. But I agree with what many of you are expressing - that it’s not helpful to compare as we are all unique and that we shouldn’t normalise period pain. I am 100% on board with that and am constantly saying publicly that we need to stop normalising period pain. While I’m still glad I posted the video I’m enjoying the robust and above all, respectful discussion that’s happening here. Thank you everyone for respecting each other and sharing your opinions. Syl x
I'm just wondering if it's wise to compare these. Endo pain comes in many forms. My pain was more like the cramp side of this video. But I've had four surgeries, constant bleeding, and infertility followed by a decision to have a hysterectomy at age 35 without being able to first conceive. I'm not sure therefore that's its helpful to compare or categorise pain symptoms. Pain is also subjective so I just don't think we can categorise pain so easily into being either endo or non-endo related.
I don't think that these are helpful comparisons. They are both in a lot of pain, and the notion of "bad but normal" period pain vs "endo pain" is what encourages doctors to fail to take people seriously. Also, maybe the woman on the left is what it looks like to be a person who has been told that it's "natural" and tries to get on with life despite chronic debilitating pain?
not to mention painful tearing sensation in thighs, back and pelvis day in, day out making it incredibly painful to sit, lie down and walk.
....because when my insides have curdled and I'm about to pass out from pain being burned is a risk I'll take. Third degree burns - on my feet of all places.
It’s comforting to me - thanks for posting. I carry a ridiculously large bag every time I leave the house, full of every drug from buscopan to tramadol, pads, relaxation sprays, magnesium rub etc etc. That made me laugh (and not feel alone) on a double tramadol day. Thanks. 🙂 I think it would be quite good just for someone who has no idea what endo is.
My drs here won’t listen that I have endometriosis. I’ve had surgery in my home town before and had it burnt off several places. Now Drs in qld won’t listen to me 😞 they brush it off. I’ve been in the worst pain lately heavy periods, feeling sick and as noted it’s still painful when my period has stopped. I’m fighting for my rights to be heard
Lili Madeline We need to get you to see a better doctor if this lady gets all that medication and you get nothing.
Certainly relate to the girl on the right pain medication doesn't work, after two operations it's come back, the nausea is horrendous, the pain is all over my back, legs and pelvis, the constant tiredness and fatigue but at the same time still being an active person have to really push myself. It's actually at it's worse this year unfortunately but I try not to let it rule my life. Enjoy my jobs, my family and friends and off course my acting, singing and dancing!
God this is me today 😢😢 Bianca Gay
I laughed at the getting ready to leave thing.... I went to a concert the other week and I could only take a small bag in it was so full of pill packets and mini heat pack etc
My daughter had 9 surgeries and one of those was a hysterectomy at the age of 23, luckily she doesn’t want children
This is brilliant!! I always have to explain what living with Endo is like. People have no idea!
Danielle 😘
Mighty good advice! I hope the medical community and particularly Drs in ER see it and LISTEN!
Holly Morgan or you’re like me who has a whole seperate bag full of medications and 3 hot water bottles in my car on rotate 🤦🏼♀️
Sam, Taylar, kind of what we were talking about on the weekend.
Ashlee Ricky
Elisha Crowther
Michaella Edelstein
Rosa Spagnolo Commisso
Anneka Atley
Fabienne Alfonso Rubio
Shenae Ieraci
Becky
Endo from a partner's perspective <3
https://stuff.co.nz/life-style/well-good/…
Endometriosis: My wife isn't alone, I suffer with her
stuff.co.nz
I never wanted my wife to feel like endometriosis was a journey she would have to take alone.
Anthony Graham Sounds exactly like you, Love you bub 💛 Andrew Munro and if neatie was on FB she would tag you too 💛
Rob Micha XOX
Massive high five to all the amazing hubbies and partners our there supporting their ladies through this horrible disease. There may not be a cure but your love and support is immeasurable! 👏
My husband was the one who urged me to see a doctor only a year after we’d married. He had two sisters and knew the symptoms I had each month certainly weren’t “normal” - his determination for me to get help early (I was only 22) meant that we were thankfully able to access help and surgery as well as the right advice so that we could naturally conceive our kids. As a result we had three kids in three and a half years very early in our marriage just to make sure we didn’t miss the boat!
James Samuel thank you x
Mark Bridges grateful for you every fucking day ♥️
Such a familiar story... so thankful for those who help us fight the battle!
Love you so so sooo much Harley Hughes 🖤🖤
Dave Kozicki you are my rock!!! I could never have made it through severe endometriosis and then severe adenomyosis without you!!! Love you xxx
Andy - you are an amazing man! Love you x
Jack Landon love you 💕
Anthony don’t know what I would do without you. Thank you for all the support and strength you give me. ❤️
Not all guys understand en dometriosis 🙁
Wow I’m sad reading this
Rebecca Hobbs thank you for always being there for me xo
Troy Anderson have a read of this
Daniel Strout sounds like you too babe xx
Grant this reminded me of you 💞 thank you x
Thank you David Walker x
Brad ♥️
Craig Barnsdall x all the late night hospital visits wheat packs and back rubs 😂💕
Lachy ❤️
Angus xx
Zac Lloyd-Jones ❤️
Daniel McDonald 😘
Yes! I was diagnosed at 19 and was told I would never have children. Fast forward 7 years and I have booked my dream overseas trip. Said to my boyfriend at the time that I’d been feeling off for a little while. Went to the Dr and she asked me if I could be pregnant. I told her I can’t get pregnant so that’s a no. She asked me to do the pee test. Two dark red lines went across the test immediately. She told me she thinks I’m quite far along. I said that it’s not possible. She gave me a blood test and told me she’d call me on Monday. Monday morning clicks around and the Dr calls me. “Suzie are you sitting down? You are 16 weeks pregnant!”. I couldn’t have been more shocked. My little miracle is 17 next month
I had my first endo surgery and was put on the pill to reduce symptoms after. Had a breakthrough bleed on the pill. Less than 3 months after surgery.. pregnant! *this followed a miscarriage in the previous year so wasn't expecting to get pregnant.
Thank you so much to the women who commented and those who emailed me. I very much appreciate you all taking the time to share your experience with me. It is a privilege to work with and for you every day - Kate (Young) x
I had my first child before the diagnosis and my next two after. All three took an effort; no unplanned babies here.
