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7 days ago

EndoActive Australia & NZ

RESEARCH PARTICIPATION OPPORTUNITY!
Dear EndoActivists, Dr Leesa Van Niekerk from the University of Tasmania is conducting research on Cognitive Behavioural Therapy (CBT) and Mindfulness Interventions for Endometriosis. See below.

"CBT is a psychological therapy that focuses on the interaction between our thoughts, feelings and behaviours.

Researchers at the University of Tasmania are conducting a pilot study investigating the effectiveness of CBT and mindfulness for managing the distress and pain associated with endometriosis.

We would like to invite you to take part in our 8-session CBT and Mindfulness group program for women who experience symptoms of endometriosis. There is no cost to attend the program.

If you live outside of Hobart, you can complete the program through a self-instruction mode where treatment materials are provided on-line or via postal service.

If you would like to know more about the treatment, please contact Dr Leesa Van Niekerk on (03) 6226 6645 or Leesa.Vanniekerk@utas.edu.au and she will happily answer any questions that you may have."
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RESEARCH PARTICIPATION OPPORTUNITY!
Dear EndoActivists, Dr Leesa Van Niekerk from the University of Tasmania is conducting research on Cognitive Behavioural Therapy (CBT) and Mindfulness Interventions for Endometriosis. See below.
CBT is a psychological therapy that focuses on the interaction between our thoughts, feelings and behaviours.
Researchers at the University of Tasmania are conducting a pilot study investigating the effectiveness of CBT and mindfulness for managing the distress and pain associated with endometriosis.
We would like to invite you to take part in our 8-session CBT and Mindfulness group program for women who experience symptoms of endometriosis. There is no cost to attend the program.
If you live outside of Hobart, you can complete the program through a self-instruction mode where treatment materials are provided on-line or via postal service.
If you would like to know more about the treatment, please contact Dr Leesa Van Niekerk on (03) 6226 6645 or Leesa.Vanniekerk@utas.edu.au and she will happily answer any questions that you may have.

 

Comment on Facebook

Olivia Grace Hicks I've just emailed about this

Fantastic research conducted by amazing researchers!!

Hayley Turner

Ella x

Tash Donaghy

Mikayla

Ashley Walker

Sarah Marshall

Liz Abbott

Alyssa Gesiotto

Emailing Leesa now!

Mel Knuckey ?

This sounds fantastic and really useful to those in the community!

Traci-Jean Berresford

Ireena Randell - was so lovely to bump into you today. Definitely have to organise a catch up. Saw this and thought it may interest you. Xx

What a great opportunity!

Jess Whiteley

Tylah Allen

Wish I’d known about this as I could’ve participated Leesa.

Tracey Orr, Maria Blight ❤️

Emy Fife

Thanks everyone for the fantastic response, we still have some spots available for each of the three options (small group, self-instruction and care as usual) 😄

Deb Lovell thought this might be of interest xx

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1 week ago

EndoActive Australia & NZ

One thing I love about holidays is having the time and the energy to put into making big batches of really yummy food for family and friends (or just myself). Today’s lunch was:

Panzanella salad with fried capers, lemony olive oil salmon, peach, basil and bocconcini salad with snow pea shoots and honey balsamic dressing, green pasta salad with peas, dill and parmesan (green sauce was avo, basil, parsley, olive oil, lemon and ricotta) and corn and coriander salsa with butter sauce.

Bread and pasta are really easy to find #glutenfree these days and a lot of people who struggle to tolerate gluten find that sourdough suits them just fine 😊

I’m still #notafoodblogger so like I said in my stories, probably best not to get used to me doing foodie posts as I’ll most likely forget all about it once I’m back in real life mode where I eat all the food on my plate before I remember to take a photo of but I guess if the people spoke and there was a public outcry for more regular #endo friendly, #antiinflammatory food posts then I would consider.
Syl xx @ Noosa Heads, Queensland
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Comment on Facebook

Wow what a spread! You’re looking so healthy Syl- glowing in fact! 💖

Oh boy am I feeling righteous this morning. Here before me I have not one, not two, but THREE vegan products. Bloody incredible protein smoothie, double espresso and my favourite new bag from @sans.beast while catch up on all the latest #endo news in my Google alerts ❤️ All the bushwalking and swimming and paddle boarding I’ve been doing over the past week has made me feel so good. Nothing like a bush walk and there is NOTHING like working up a sweat and getting to swim in a natural fresh water Rockpool, of which there are so many here on the Sunshine Coast! Hoping I can find some goodies when I’m back in Sydney.

Seeing as we haven’t spoken about diet for very long... have you noticed that certain foods or certain drinks make your gut unhappy and/or trigger pain?
Comment below so our fellow EndoActivists can get a sense of what works and absolutely does not work for each person. Of course we’re all different but from experience, I’ve noticed a lot of similarities among women with endo regarding which foods help them thrive and which ones wreak havoc.

Syl xx
... See MoreSee Less

Oh boy am I feeling righteous this morning. Here before me I have not one, not two, but THREE vegan products. Bloody incredible protein smoothie, double espresso and my favourite new bag from @sans.beast while catch up on all the latest #endo news in my Google alerts ❤️ All the bushwalking and swimming and paddle boarding I’ve been doing over the past week has made me feel so good. Nothing like a bush walk and there is NOTHING like working up a sweat and getting to swim in a natural fresh water Rockpool, of which there are so many here on the Sunshine Coast! Hoping I can find some goodies when I’m back in Sydney.
Seeing as we haven’t spoken about diet for very long... have you noticed that certain foods or certain drinks make your gut unhappy and/or trigger pain?
Comment below so our fellow EndoActivists can get a sense of what works and absolutely does not work for each person. Of course we’re all different but from experience, I’ve noticed a lot of similarities among women with endo regarding which foods help them thrive and which ones wreak havoc.
Syl xx

 

Comment on Facebook

Agree with the low FODMAP diet, it's helped me a lot 😊😊😊

I’ve been having huge success with the low FODMAP diet. I still have terrible pain, but this reduces it drastically. Currently I’m trialling gluten free on top of low FODMAP, but it hasn’t been a month yet, and it’s too soon to tell if it helps. I do find the restrictions tough occasionally, but when I see the pain eating my trigger food causes, it doesn’t seem so unreasonable to eat this way.

We are pretty lucky up here with the amount of bush walks. Which one did you go to? I love Booloumba Creek and Falls in Conondale National Park

Talkin’ shit about endo, anxiety and not giving in to the negative self-talk that creeps into your brain when you spend time looking at Puritan ‘health warrior’ social accounts with @katepascoesquires ❤️❤️❤️

It’s ok not to be a vegan yogi who manifests their intentions every morning and journals daily and meditates hourly and takes thousands of photos of perfectly constructed açai bowls with rows of carefully sliced fruit (as much as my OCD tendencies kinda love this it is fucking impossible!!) and sleeps with crystals and doesn’t drink or smoke or take illicit drugs or sleeping pills or hormone therapy and only eats organic everything and exercises daily and plays a bamboo flute and sips herbal tea with like minded friends for a fun night out and knows without a doubt that they’re on the right path in life because the universe told them and gave them a sign and the sign was a grass-fed Himalayan goat’s non genetically modified Pubic hair sitting atop their very expensive B3 vitamin infused organic mascara (which they obviously don’t use because #cleanliving) and the goat pube spelled ‘namaste’ because duh do you even yoga darl ?! It really is ok to not be that person, all power to them... and to just be yourself.

I’m personally very over beating myself up about all the things I am not and all the things I should be. I just want to be me and to feel proud of being me.

I don’t make New Years resolutions but this year I’m going to make an effort... no MORE of an effort... to compare less, be me more and not to feel an ounce of guilt for being ‘less than’, ‘not as good as’ or ‘never good enough’. OVER IT!!! Oh AND if I suck at doing this, I refuse to feel guilty!

❤️❤️❤️Syl

FYI, I am in no way meaning to insult anyone who identifies with any of the above. I’m merely making the point that a lot of ‘health’ and ‘wellness’ accounts on social media are saturated with certain stereotypes and give the impression that you must lead a Puritan lifestyle of a particular type in order to feel well, be healthy and be WORTHY. I’m simply saying that I do not subscribe to this and there is more than one way to be well, feel good, stay healthy and live a fulfilling life. ✌🏽
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Talkin’ shit about endo, anxiety and not giving in to the negative self-talk that creeps into your brain when you spend time looking at Puritan ‘health warrior’ social accounts with @katepascoesquires ❤️❤️❤️
It’s ok not to be a vegan yogi who manifests their intentions every morning and journals daily and meditates hourly and takes thousands of photos of perfectly constructed açai bowls with rows of carefully sliced fruit (as much as my OCD tendencies kinda love this it is fucking impossible!!) and sleeps with crystals and doesn’t drink or smoke or take illicit drugs or sleeping pills or hormone therapy and only eats organic everything and exercises daily and plays a bamboo flute and sips herbal tea with like minded friends for a fun night out and knows without a doubt that they’re on the right path in life because the universe told them and gave them a sign and the sign was a grass-fed Himalayan goat’s non genetically modified Pubic hair sitting atop their very expensive B3 vitamin infused organic mascara (which they obviously don’t use because #cleanliving) and the goat pube spelled ‘namaste’ because duh do you even yoga darl ?! It really is ok to not be that person, all power to them... and to just be yourself.
I’m personally very over beating myself up about all the things I am not and all the things I should be. I just want to be me and to feel proud of being me.
I don’t make New Years resolutions but this year I’m going to make an effort... no MORE of an effort... to compare less, be me more and not to feel an ounce of guilt for being ‘less than’, ‘not as good as’ or ‘never good enough’. OVER IT!!! Oh AND if I suck at doing this, I refuse to feel guilty! 
❤️❤️❤️Syl
FYI, I am in no way meaning to insult anyone who identifies with any of the above. I’m merely making the point that a lot of ‘health’ and ‘wellness’ accounts on social media are saturated with certain stereotypes and give the impression that you must lead a Puritan lifestyle of a particular type in order to feel well, be healthy and be WORTHY. I’m simply saying that I do not subscribe to this and there is more than one way to be well, feel good, stay healthy and live a fulfilling life. ✌🏽

 

Comment on Facebook

Syl so goats have pubic hair? No kidding😄

😊

Ruth Elizabeth Fawcett

Poingnant and impressive! #deepinfiltratingmultiorganstage4endometriosissurvivor

OMG YES!!! 🙌🏼🙌🏼

Preach! 🙌🏼

Thank you for this!!!! As it’s a constant battle of trying and then the guilt when you don’t.. 🙌😻

Amen!! 👐

🤣😂😆Currently looking my worst but feeling my best after sharing my body with disease for over 30 years💪💛

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2 weeks ago

I think I heard on the radio news this morning there could be a break through in research for an over the counter medication that can stop the growth of endo. Anyone else here this? ... See MoreSee Less

2 weeks ago

EndoActive Australia & NZ

Hey EndoActivists, I’m currently in Noosa on family holiday.

My pain flare (hope I’m not jinxing myself here!!) seems to be over which is great. It lasted 3 weeks on and off and was likely triggered by the way I was exercising and NOT because my #endo has returned.

This is great news and means that my last laparoscopy in 2014, in combination with the hormonal medication I take called Visanne and all my daily self-management such as nutrition, self-care, adequate sleep, appropriate supplements, good gut health etc etc ... all of these things are helping to keep my endometriosis at bay WHICH IS GREAT!!!!

As you guys know, my main struggles since my pain pretty much went away in 2015 have been fatigue and weak immune system. I’m still working on these.

Going back to the pain flare, this can happen and doesn’t necessarily mean endo is back!! If you’ve had chronic pain, a small event can trigger old pain pathways. In my case it was most likely doing abdominal and core strength exercise and my pelvis did not like that even though I was loving it!!

This was a bit of a bummer (ok massive bummer) and I was forced to stop training 4 weeks ago until the flare simmered down. I’m now trying to ease back into exercise by walking while I’m on holiday. When I’m back in sydney I’ll be going to a pelvic floor physio to discuss ways I can exercise that won’t give me a pain flare.

I’ll also be returning to my endocrinologist to chat about changing hormonal therapies as my beloved Visanne is working “too well” and my ovaries are too suppressed, meaning that I’m not producing any oestrogen or testosterone - hence my fatigue, low mood and trouble feeling motivated etc etc

OHHH ENDO ANDOHHH HORMONES! What fun you are. Just a quick update while I am feeling alert and motivated!! (To go eat food). Love to you all ❤️❤️❤️ Syl
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Comment on Facebook

Tara, see comments 😘

Visanne is a wonder drug! I have been in it for 2 years and am pain free. After my first surgery I was diagnosed and went through years of pain with no future of it getting better. Thank god my doctor is on top of his industry and recommend this drug. Hats of to the Pharma companies and the people behind it. Everyone with Endo needs to ask their dr about it.

Beautifully written Syl

I found an exercise physiologist very helpful Syl. You can get visits on a chronic health management plan from G.P also. I did that & pelvic P.T together. As always, thanks for ALL you (& mum) do. Happy happy holidays x

I have been on vissane for 6mths n love it

Pelvic floor physios are worth their weight in gold. Re your estrogen & testosterone suppression - can you take a little add back HRT on visanne? My endocrinologist gave me some when I was in Zoladex then synarel and it improved so many symptoms but wasn't enough to set periods going again

It’ s a windy journey to ‘managing’ #endo and it associated ‘friends’💪💛

Enjoy your holiday! ⛱️

❤👍❤

Rachel Heslington

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