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About bloody (pun intended 😉) time!!
Caroline Harris
share it with your friends
Done i'm glad to be able to help.
this was really wonderful and showed me despite everything i’m incredibly compassionate to myself 😊
completed and shared💛💪
Done ✅
Done
Filling out this survey made me reflect on some issues about my 'condition'. That I used to be incredibly hard on myself for all of my life. As my 'condition' has been with me for most of my life (emotionally absent parents), I had never known that I was meant to feel different. A Naturopath who I hold in high regard, said to me recently: "You have lived your whole life as though through a frosted pane of glass. Many people in your condition are angry, bitter and resentful; but somehow you have managed to get over that - and that is something to be very proud of." I could see that other people were different, and I felt that 'someone' had decided not to give me what was given to other people as some sort of spiteful act. So yes, at that time I felt bitter and resentful towards the whole world. I also blamed myself with a vague feeling that I had done something wrong to deserve it. It was not until my late 30's that I began the long long journey of finding out what was wrong, why it was wrong, and what I could do about it. After several decades of that, I have now realised that all I had to do was learn to LOVE myself; not in a way that excuses all of my addictions; but in a way that I trust will eventually lead me to a place where I don't want/need my 'addictions', and that I am completely content and grateful for the way I really am. One of the biggest things that helped me was to learn to be grateful for simple and basic things; such as the beautiful trees, the song of a bird or interesting people. I used to be terrified of people in general, and of engaging with them. I am not completely there yet, not by a long shot; but I am, on a physical level, on my way. I have faith that when I do get there, all of my physical symptoms will be gone. I am now in my 60's and already physically healthier than I was for the first 3-4 decades of my life. My advice to all people in my condition - or not - is "Learn to Love yourself in a pure, honest and non-narcissistic way, and love others in just the same way."
Lauren Vogt
Thanks EndoActive for all your support and excellent guidance with our research 🤗💛
Completed
Louise Eiszele, Gretta Kingston
Jodie Cattell
Monie Perth
Ella
Holly Goodwin
Sarah Griggs
Ana Mohammed Waqabaca
Karlee
Coralee Mary Shani Erin Amy Lane Karlie Tanner
I'm over 50 now and have struggled with endo all my life - my daughter is now experiencing issues and trying to convince the Drs to look further into her issues is an up hill battle - we know our bodies and I wish the medical professional would listen!
At 56, the journey has been long and hard. This research is very important too so many 💛💪🏼#beweller
As one of the researchers you have so kindly supported - a GIGANTIC thank you 💛
I'm interested in the survey I have my first lap at the end of this month
I had my second laparoscopy yesterday so the pain is fresh. I love that endo is being researched. I do every survey you post!
Bo is gorgeous. I’ll do the surveys. I’ve suffered since I was 16 but not diagnosed until 33, I’m now 52
I’m happy to do them too
Oh you will want to get your own dog. They are the best especially when you are sick.
'Do mad people get endometriosis or does endo make you mad?' | Sylvia Freedman
theguardian.com
The idea that endometriosis is a form of mental illness or is somehow caused by poor mental health is one that persists among doctors, a new study findsYep, I was told I had a low pain threshold. When I was in labor, that pain was on par with my endo, in case you still think it's just 'peroid pain.'
My endometriosis specialist at a "world class" endometriosis centre told me that the pain is mainly in my head and gave me a 150mg a day starting prescription for an antidepressant because I'm in pain because I'm sad. No, I'm sad because I'm in pain. And despite the fact that I've taken these exact antidepressants before and they sent me crazy, she refuses to help me further until I've taken them.. I would rather be in pain than go through that again, thanks byyyeee 👋🏻 Pretty much everyone else I know who has seen this specialist gets the same treatment. 🤷🏻♀️
Rachel Heslington
Lauren Vogt
Tiarne ... your thought! 🤷🏻♀️
"Endometriosis", "Fibromyalgia" and "Autoimmune diseases"
endonews.com
Greenbaum et al. from Israel investigated the prevalence of and the association between endometriosis, fibromyalgia and autoimmune disease in a large population…Aimee Mae Khann
An so many more I now have
Jen Bullers
Amanda Emerton
Amy Rose
Wendy E Lochtenberg
Carmel Leyshon
Karen Warner
Ariela Jacobs
Holly Walker 😲you have all 3 xx
Sam Cornell
Gaby Jane
Manda Rin
Shelby Trigg
Renee Carpenter
Chris Creagh not great chances of me not getting it!
Vivienne Collings for what it's worth.
Having too much sex? That’s what she was told in Ireland!!
Doctors shamed me telling me to stop having sex when agonising pains could be endometriosis
thesun.co.uk
A BRIDE-TO-BE has been living with agonising pelvic pain for the best part of a decade after docs put it down to having “too much sex”. Sarah Rose McCann is so desperate for help that s&he...I am 70 and have had Endo since 14 lucky to be diagnosed at 15 by a cluey Doctor, he prescribed the pill (quite new then)and he and my Mum were at pains to advise “not a contraceptive” I would not have even thought about that just wanting some relief. 3 children by 28 then removal of right ovary & both Fallopian tubes (bit mangled). Many laparoscopic procedures ensued and at 32 total hysterectomy for the rest, within 6 months started HRT and have finally weaned off them 2 months ago (taken 8 years to wean off) as I was concerned how I would go since Endo is in the umbilical. Experiencing some slight symptoms but prepared to give things a bit of chance after all this time. Appendix gone, gall bladder gone, IBS (now under control with diet) & diverticulitis helped with diet care also. Life is good, loving & caring 2nd husband good family & friends.
Wow and most medical professionals also tell you to get pregnant
Hi everyone! I'm the girl in question in this article & I just heard that this article existed. I DID NOT GIVE ANY PERMISSION for my story to be printed in the Sun I didn't even speak with this journalist and the pictures have been taken without my permission from my Facebook. I did a small local article for a local paper in Belfast and a friend who is from Auz just shared this with me on my lunch break. I hope it resonates with you, I'm just so shocked they would use my story without asking my permission. Also regarding the having too much sex thing, the only reason I mentioned this to the reporter on the off chance is because I suffer from overactive pelvic floor dysfunction so have pain during sex, which is why it was so ridiculous of the doctor to suggest this. In the original article this was mentioned with care, however it's really distressing that this is the only aspect that seems to be picked up. x
I actually got told something similar when I was around 20, doctor just said to stop having sex. Two surgeries later and a colposcopy and it's still not really manageable. Guess our issues are too hard to manage 😥
Yup. I was 14 when it started was told theres nothing wrong. One day you will have a baby and pain will go away. I was 27 when 1 dr listened to me. And it was endometriosis. We couldnt fall pregnant until after op with 3 procedures. After having severe pain most of my teen and adult years, its definitely something hard to live with.
Christ that pisses me off!
Burn them. Burn them all.
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