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9 hours ago

EndoActive Australia & NZ

It’s a Sunday and I’m at uni. Who am I? ... See MoreSee Less

 

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A staff member

Nola Marino MP's BRILLIANT speech in the House of Reps, 18 June 2018 ... See MoreSee Less

 

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Sitting at home with a heatpack in my trackies silently cheering.

Thank you for your touching speech and for spreading awareness and for all your hard work means a lot to all endometriosis sufferers and hope one day we can find a cure but this is a start thank you so much

🙏🏽❤️ Thank you EndoActive for sharing 🙏🏽❤️ And thank you Nola for all that you are doing! 🙏🏽❤️

Thank you Julian Leeser MP for joining the incredible force of Gai Brodtmann, Nicolle Flint Member for Boothby, Nola Marino MP and the other parliamentary friends for endometriosis awareness and supporting EndoActive and our Australian Coalition for Endometriosis (ACE) in our campaign to have endo recognised by our federal government. 😜🤪😄
Syl
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Thank you Julian Leeser MP for joining the incredible force of Gai Brodtmann, Nicolle Flint Member for Boothby, Nola Marino MP and the other parliamentary friends for endometriosis awareness and supporting EndoActive and our Australian Coalition for Endometriosis (ACE) in our campaign to have endo recognised by our federal government. 😜🤪😄 
Syl

5 days ago

EndoActive Australia & NZ

ENDO IN PARLIAMENT... AGAIN!!
Will we ever get sick of writing that? NOPE!!!!

Thank you to Nola Marino MP and the 7 other MPs for delivering such brilliant speeches on endo in parliament yesterday.

We have requested all 8 videos from Parliament House. In the meantime, here's Julian Leeser MP's speech. How wonderful is this?!

Julian - a huge congratulations and thank you again. Your speech is incredibly moving and we are honoured to have been mentioned personally. And congratulations to you and your wife, Joanna, for becoming new parents. 🙂
Syl & Lesley Freedman <3

Endometriosis Australia QENDO - Endometriosis Association (Qld) Inc Pelvic Pain Foundation of Australia Canberra Endometriosis Network (Discussion Group)

Julian Leeser MP
It was great to be back in Parliament today speaking about issues important to me - like endometriosis, which affects 1 in 10 women. My message to women experiencing pain is don't suffer in silence. Get it checked and checked again.

My admiration goes to all those working so hard to raise awareness of Endo - especially Leslie and Syl Freedman, and all the team at EndoActive Australia & NZ.
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Syl & Lesley....Thank you!!! Because of you wonderful ladies there is hope for our futures of one day being pain free!! You truely are amazing xoxo

Wonderful - so happy that he recognised Syl and Lesley 🙏👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻

Great work as always!! 💁🏼‍♀️💁🏼‍♀️

Awesome, you guys in Aussie seem to be moving forward in terms of this being spoken in parliament. I wish NZ was just as proactive!

👏🏻👏🏻🙌🙌

💕

Sareena Makirii

Emilly Moors-Chantry

Matthew Styles

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5 days ago

EndoActive Australia & NZ

More to come, EndoActivists! Yesterday was a HUGE day for endo awareness in Parliament. Watch this space for videos of the speeches delivered by MPs in the House of Reps. Re-post from Gai Brodtmann. <3Just finished my speech for tomorrow calling for an end to the silence on #endometriosis.

Thank you #endowarriors #endoactivists #oneinten #families #friends QENDO - Endometriosis Association (Qld) Inc EndoActive Australia & NZ Endometriosis Australia Pelvic Pain Foundation of Australia Canberra Endometriosis Network #canberraendometriosiscentre #australiancoalitionforendometriosis

#endthesilenceonendo
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More to come, EndoActivists! Yesterday was a HUGE day for endo awareness in Parliament. Watch this space for videos of the speeches delivered by MPs in the House of Reps. Re-post from Gai Brodtmann.

6 days ago

Hi Lovely Endo Sisters! Just wanted to know what sort of heat packs/hot water bottles you use? Mine is a long rectangle one but I wanted to know if there are triangle ones out there? Also if there are ones where they stay hot for longer? ... See MoreSee Less

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HI Natalie - of course hot water bottles and wheat bags are great but if you're out and about we find the Hottteeze heat packs are brilliant. You can use more than one at a time, they're discreet and last for over 12 hours. Pour the contents into the garden afterwards!!

3 weeks ago

Hi ladys just wondering if anyone would like to have a chat about endo n symptoms i need to ask few questions i have it really bad ... See MoreSee Less

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Ask away Tayla

DVD . dispatched Free to you today Tayla.

3 weeks ago

EndoActive Australia & NZ

Endo on the today show in a few hours!It's often brushed off as "women's business," but it's becoming a silent epidemic. Endometriosis is a disease that affects a staggering one in ten Australian women, yet it's rarely spoken about! Would you like to see that change? Let us know your thoughts and tune in for the chat TOMORROW on Today's Agenda. #9Today ... See MoreSee Less

Endo on the today show in a few hours!

 

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Yes!!! Can we also include Adenomyosis when we talk about Endo. I never even heard of it until i was diagnosed.

100% yes and I can happily tell someone my story. 12 years sufferering no kids lost my fertility gone thru menopause not even 33 yet.

Yes

Please be more open, but one thing I think is super important to remember with anyone that you know suffering endo is that just because you can’t see it, doesn’t mean it isn’t there, and just because we look “fine” doesn’t mean we aren’t crying on the inside from the pain and feeling like we are rotting from the inside out. We just get on with it. An invisible disease doesn’t mean being oblivious to it... much love to my fellow endo sisters.

Shikira van Lawick

Yes, we should be more open about endometriosis. As it affects 1 in 10 women. It needs alot more awareness, so that soo many women don't have to suffer in silence anymore. I have suffered from endometriosis since I was approximately 18 years old, I'm now 40 years old. I am currently contemplating a hysterectomy, as the pain is excruciating now. There is also a possibility that it could be growing into my bowel. Endometriosis can spread anywhere throughout your body outside of the uterus. It can even spread to the brain. When endometriosis lesions flare up, they can cause excruciating pain.

Yes it took about 10 years to get diagnosed with it and not have a Dr say that it's normal period pain or you get the pain every month you should be use to it by now just take a pain killer

Yes!!! I was diagnosed at the age of 19...I had no idea what it was, I was in pain constantly (I'm now 33). I have lost count with how many minor surgeries I have had. More awareness and the ability for others to understand what endometriosis is and what women go through and drawing attention to what support is out there is important.

Yes and I can say that seeing my daughter in year 12 go through this ongoing debilitating condition this year is so hard and trying to give her positive strategies when there isn’t a cure is extremely hard. She is incredibly academic and gorgeous young lady and has had to give up her job, lifestyle and now she is re thinking her career. Not something you ever plan and have to endure for our beautiful daughter. She has already had the laparoscope in January and is still suffering symptoms. Taking her to a top research specialist in Endometriosis in Sydney to get some daily strategies to help her get through this year.

Yes 100%. It took me a very very long time to be diagnosed. It took me a very long time to find a doctor who knew about it, wanted to help me and was compassionate.

This shouldn't even be a question!! This is women's health - women's LIVES at sake, OF COURSE we should be talking about it!! This disease and many others like it need so much more attention and help finding a cure

Is it just me or does it always sound like the reporters always say endometriosis really weird lol!! Really good segment tho! Good on them for talking about it 💪.

Danielle Loizou its on thjs mkrning!

Yes it is such a nasty disease I know I've had it everyone is different I found A marvelous Lady that helped me through massage and minerals

Yes

Yes!

Yes for sure!!!!!!

Yes

Yessss

Yes

Tisha Withers

Mansi Yadav

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