by Syl Freedman | Sep 15, 2016 | News
Hey EndoActivists, Tonight we’re getting all dressed up with our fingers and toes crossed, hoping to take home an award at the 2016 Prime Awards. We’re amazed to have made it into the final round and incredibly proud of what we’ve achieved to... 
by Syl Freedman | Sep 8, 2016 | Further reading, News
Hey EndoActivists, Every year, millions of women with endometriosis are misdiagnosed. Their pain is often dismissed or labeled as IBS, anxiety or hypochondria. We know this is true because so many of these women (you guys!) write to us and tell us their stories. It... 
by Syl Freedman | Aug 24, 2016 | News, Thoughts and reflections
5 September UPDATE Results: ‘possible low-grade changes’. This essentially means my body is still fighting HPV but that it is gradually healing. Improved results from last time where I had definite low-grade changes. Good news says my doctor. I’ll have another... 
by Syl Freedman | Aug 12, 2016 | News
Hey EndoActivists, Here I am talking about Endometriosis to a packed auditorium of hundreds of people 2 weeks ago. I was in Melbourne speaking at HISA’s Health Informatics Conference as a patient advocate who has used social media to create an online community... 
by Syl Freedman | Aug 5, 2016 | News
EXCITING NEWS ENDOACTIVISTS! Yesterday I got notice of a collaboration between pharmaceutical company Bayer and Evotec regarding treatment of Endo. With not much other information it’s easy to be cynical of this news. Of course it won’t be a cure. Of course both... 
